For our family, the joy of having a newborn baby girl was cut short in June 2013, when we received the devastating news that our three week old daughter, Sienna, had a genetic disease called Cystic Fibrosis. Cystic Fibrosis is a progressive disease in which a defective protein causes mucus to build up in the body. This results in chronic lung infections and issues with the GI system. Over 30,000 Americans fight this disease daily and need your support in finding a cure! Medicine and therapies have come a long way to prolong the life of those battling this disease, but it's not enough. Children and teens who spend hours each day taking pills, doing breathing treatments, and on antibiotics to fight infections, are still losing their battle with CF. At seven months old, our little girl has only begun preventative treatments. Each day, we spend 30 minutes doing Chest Physiotherapy (CPT) to dislodge any mucus that may be accumulating in her lungs. Each day, we add salt to her bottles to replace the salt that is leaving her body. Sienna is an incredibly sweet and adorable little girl and we greatly appreciate you helping to find a cure and new treatments.
To follow Sienna's journey visit her mom's blog http://southernlivingwithsienna.blogspot.com/
